I have used my Frequent Flyer Miles to purchase my LAX to Kathmandu airline ticket! Things are coming together.
I just found out that of the 39 states which recognized Rare Disease Awareness day in 2009, California (my state) was not one of them! Within 18 hours, I had a letter written and mailed to both Governor Schwarzenegger and the First Lady Maria Shriver asking them to declare February 28, 2010, Rare Disease Day in California.
I cannot begin to explain the panic one feels when you know something is serious wrong with your health but no one has been able to help because they do not know the cause. By climbing Mt. Everest, I hope to draw national and international attention to the need for Rare Disease Research.