Life is as crazy as usual. After 5 years of work, Banner on the Moon showed at CSUF last Saturday and it should be available for On Demand viewing within a few weeks. Our house in Willow, AK is in the beginning stages of construction and should be completed by October. Exciting stuff – love life!
We just returned from watching the start of the 2016 Iditarod. It was very strange to not be running in this year’s race. The day before the race started, I spoke at the Iditarod Winter Teacher Conference, great group! And we bought a lot and are building a house in Willow, 6 miles from Dream a Dream Dog Farm – we are moving to Alaska! Then I can just take a snow machine to the kennel – here we come dogs!
First screening of Banner on the Moon was yesterday at the Keck Graduate Institute with Dr. Ian Phillips, Director of the Center for Rare Disease Therapies. It was a private screening for their annual Rare Disease Day at KGI. Dr. Phillips is holding the NORD banner I held on the summit of Mt. Everest and at the finish line of the Iditarod. I am holding NORD’s 2016 Handprints Across American flyer. Monday, Feb 29th is Rare Disease Day USA 2016.
Yup – Lance Mackey says it all! This is exactly why I chose his kennel when I started training to run the Iditarod.
Since my rare disease diagnosis in 2007, my life’s focus changed and I started traveling on a new path. The road has been very challenging but also very rewarding. These are symbols of that journey: Mt. Everest Summiteers’ Medal, Iditarod Finishers’ Belt Buckle, and NORD Rare Disease Public Awareness Award.
The feature-length documentary about my journey is finally complete and heading for the film festivals! You can watch the film trailer at Banner on the Moon.
Yesterday I spoke at the Association of Applied Sport Psychology Conference in Indianapolis. The title of my presentation was Personal Stories of Resilience. After my presentation there was a panel discussion which had a very interesting effect on me: until then, I had taken for granted my ability to preserver.
On May 19, 2015 I will be honored with the Rare Disease Public Awareness Award from the National Organization of Rare Disorders (NORD) at their Portraits of Courage Gala in Washington DC.
Portraits of Courage Gala
View live streaming of the event at NORD Gala 2015 Live