Rare Disease Public Awareness Award

On May 19, 2015 I was honored with the Rare Disease Public Awareness Award from the National Organization of Rare Disorders (NORD) at their Portraits of Courage Gala in Washington DC.
Portraits of Courage Gala

View live streaming of the event at NORD Gala 2015 Live My award presentation can be seen in Part II, at 18 minutes.