Facts: A Quick Look

Why I created this Website: 

  • To Raise Rare Disease Awareness.
  • To show how adversity can elicit hidden strength, and I hope to inspire people to live life to its fullest and reach for their dreams.
  • To impress upon people the value of life. Life is for living, loving, and experiencing everything and everyone in our world or other worlds (Yes, I would like to take the NORD banner for a walk on the Moon, but that is for another day).

About Me:

    • 57 year old, wife and mother.
    • Diagnosed with Wegener’s granulomatosis, August 1, 2007.
    • Functionally blind in left eye (from disease).
    • On a immunosuppressant medication to control disease.
    • Retired part-time faculty, California State University, Fullerton, Health Science Department.
    • Keynote Speaker.
    • Master of Science in Kinesiology, graduated summa cum laude, California State University, Fullerton.
    • Summited Mt. Everest on May 23, 2010.
    • Completed 1000-mile Iditarod Sled Dog Race on March 22, 2015.

My Hobbies:

  • SCUBA Diving
  • Sled Dog Mushing
  • Ballroom Dancing
  • Mountain Climbing
  • Underwater videography
  • Loving my wonderful husband of 25 years

Volunteer Work:

  • Awareness Advocate for the National Organization of Rare Disorders and the Vasculitis Foundation.
  • SCUBA Divemaster, CSUF, 1992 to Present.
  • First Aid and CPR Instructor, American Red Cross, 1993 to 2002.
  • Graduate-Student Member, Institutional Review Board, CSUF, 1993 to 1996.

Author:

  • Reaching Beyond the Clouds: From Undiagnosed to Climbing Mt. Everest, published August 2011

Executive Producer:

  • Banner on the Moon, a feature-length documentary chronicling my journey (2016).

Academic Contributions:

  • Manuscript publication, International Journal of Sport Psychology, 1999.

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