Why climb Mt. Everest?

Every person who attempts to summit the World’s highest mountain has their own reason as to why. For me there are three reasons:

  1. to Raise Rare Disease Awareness.
  2. to raise money for research and support services via the Vasculitis Foundation.
  3. to show people the value of life and that life is for living.

3 thoughts on “Why climb Mt. Everest?”

  1. I also have WG and while I’ve had non-stop complications for over 3 years, reading your story helps spark my confidence that I can get my life back. Before I got sick I was a strong hiker and extremely healthy. I haven’t been able to walk my dogs in over 4 years. Hopefully things will turn around soon. I’ve started a new drug this week. Thank you for using your life to help others.

  2. Christie, Good luck with the new medication! I hope that you have great doctors to care for you. What is so maddening about WG is that it effects are so unpredictable and each one of us has our own unique situation. As my doctor at UCLA said: We are all our own case study which makes treatment difficult – there just is not enough research being done, but I am working on that by trying to raise awareness and funding. While I do not know your situation, I can tell what I said to myself “Disease: You can make me blind, so sick I cannot sit, have strokes, and pain in every joint – BUT I will not allow you to control me – I will live my life!” I am sure your dogs would love for you to grab their leaches and walk out that door with them. Can you? Can you just stand up and do that? I taught myself to ignore the disease’s effects and carry on with my day; and for the most part, I am able to. So do not wait – take your life back! Let me know when you have walked your dogs :) And maybe we can hike together one day.

  3. Best of luck to you Cindy.

    I read your article on the Wegeners message board. I was diagnosed with Wegener’s back in 2005. I spent two weeks in the icu intubated and another two weeks in the hospital. My lungs were almost completely filled up with blood. The only reason I survived was being in reasonable physical condition. This past summer I rode in the Seattle to Portland bike ride (200 miles in 2 days). I realize this disease affects everyone differently, but people can still be physically active. I lost about 25% of my lung function which means that I run a 9:30 mile instead of a 7:30 mile, and it takes me longer to hike up mountains.

    I have had a relapse this fall and I am back on meds, but I try to look on the bright side. You are a great example to people who have vasculitis that you can still reach for your dreams!

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