Rare Disease Day is Feb 28th. On March 4th I will be starting the 1000-mile Iditarod Sled Dog Race. In 2015 I completed the 1000-race for the 1st time, and stood at the finish line holding the NORD (National Organization of Rare Disorders) Banner that I held on the summit of Mt. Everest in 2010. This is Cy, he was on that team. He is now retired but he is still my “special boy.”
The house we are building in Willow, AK is coming along very well. Movers are coming in a few days to ship our stuff. We should be moved in by November.
Today I sign-up for the 1st race of the season (McGrath Trail Mail 202) starting Dec 18th. This new/old race has some interesting history. http://www.mcgrathmailtrail202.com/
Exciting stuff!!! Stay tuned.
After 5 years in the making, the documentary chronicling my journey is finally live! You can get BANNER ON THE MOON on iTunes, Amazon, and Google Play.
The film links are on listed the Documentary Page
You can go to each distributor and search for the film name.
We just returned from watching the start of the 2016 Iditarod. It was very strange to not be running in this year’s race. The day before the race started, I spoke at the Iditarod Winter Teacher Conference, great group! And we bought a lot and are building a house in Willow, 6 miles from Dream a Dream Dog Farm – we are moving to Alaska! Then I can just take a snow machine to the kennel – here we come dogs!
First screening of Banner on the Moon was yesterday at the Keck Graduate Institute with Dr. Ian Phillips, Director of the Center for Rare Disease Therapies. It was a private screening for their annual Rare Disease Day at KGI. Dr. Phillips is holding the NORD banner I held on the summit of Mt. Everest and at the finish line of the Iditarod. I am holding NORD’s 2016 Handprints Across American flyer. Monday, Feb 29th is Rare Disease Day USA 2016.