Category Archives: My Journey

Rare Disease Day 2017

Rare Disease Day is Feb 28th. On March 4th I will be starting the 1000-mile Iditarod Sled Dog Race. In 2015 I completed the 1000-race for the 1st time, and stood at the finish line holding the NORD (National Organization of Rare Disorders) Banner that I held on the summit of Mt. Everest in 2010. This is Cy, he was on that team. He is now retired but he is still my “special boy.”

Life is Wonderful

Great photo of Vern Halter and Susan Whiton’s Dream a Dream Homestead. This is were I have been running dogs from for the past three seasons. Up unitl last Sunday, I lived upstair in the big building. Our new house is 5 miles north and I can get to the kennel by road or trail. A few years ago, if you asked Larry or I would we ever move to Alaska, the answer would have been “no.” Not only did we move here, we built a house, and I am running the Iditarod again :) We are having a blast moving along the road of life – awesome!
dream-a-dream-homestead-ariel-small

Love Life!

Life is as crazy as usual. After 5 years of work, Banner on the Moon showed at CSUF last Saturday and it should be available for On Demand viewing within a few weeks. Our house in Willow, AK is in the beginning stages of construction and should be completed by October. Exciting stuff – love life!

CSUF Film Showing

 

Moving to Willow!

We just returned from watching the start of the 2016 Iditarod. It was very strange to not be running in this year’s race. The day before the race started, I spoke at the Iditarod Winter Teacher Conference, great group! And we bought a lot and are building a house in Willow, 6 miles from Dream a Dream Dog Farm – we are moving to Alaska!  Then I can just take a snow machine to the kennel – here we come dogs!Leaders March 2016 - Copy (1280x905)

Rare Disease Day at KGI

First screening of Banner on the Moon was yesterday at the Keck Graduate Institute with Dr. Ian Phillips, Director of the Center for Rare Disease Therapies. It was a private screening for their annual Rare Disease Day at KGI. Dr. Phillips is holding the NORD banner I held on the summit of Mt. Everest and at the finish line of the Iditarod. I am holding NORD’s 2016 Handprints Across American flyer. Monday, Feb 29th is Rare Disease Day USA 2016.Keck Institute RDD 2016