Archive for February, 2011

The Dennis Miller Show

by Cindy on Feb.27, 2011

Monday, February 28, is World Rare Disease Day. And 7:30 AM (Pacific Time) I will be interviewed live on The Dennis Miller Show. To listen to it on the radio you can find your local radio channel and air-time on Radio Channel Finder. Or you can listen to it live on your computer by clicking the Dennis Miller Show link shown above, once on his homepage click the “Listen Live Now

Rare Disease Day 2011 Photo

by Cindy on Feb.27, 2011

On Monday (Feb 28th), go to my Photo Gallery to see my 2011 Rare Disease Day Photo.

“Alone we are rare. Together we are strong”

Raise Your Hand

by Cindy on Feb.24, 2011

Exciting News From NORD

by Cindy on Feb.23, 2011

Just released from National Organization of Rare Disoders, “U.S. Senate Approves Rare Disease Day Resolution by Unanimous Consent on February 17 designating February 28, 2011, Rare Disease Day across the U.S.”

Last year I held the Rare Disease Day banner on the summit of Everest. This year for Rare Disease Day I have a surprise! Check back in a day or two :)

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