Archive for January, 2011

NORD is in this month’s Pepsi Refresh Challenge Project and needs your help!

by Cindy on Jan.03, 2011

 In this project, organizations win grants by receiving the most votes in their category.  NORD has proposed an idea that has been accepted by Pepsi for the $50,000 category.  It is based on the belief that knowledge is power, and that rare disease patients and their families need information to be their own best advocates.

Specifically, NORD’s idea is to update and expand the Rare Disease Database, a unique online resource that provides reports in patient-friendly language on more than 1,200 rare diseases.

You can read about NORD’s idea and sign up to vote on the Pepsi Refresh website.  Every individual is allowed to vote once a day.  During the month of January, please vote every day in support of NORD’s idea.

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