Reaching Beyond the Clouds

There are 15 rare diseases that fall into the category of vasculitis (inflammation of the blood vessels). Today (the 3rd anniversary of my diagnosis) Larry, Teshia, and I went to the 2010 Vasculitis Symposium where I was the Motivational Speaker. As it turns got I was very inspired by the room filled with the hundreds of people attending this event. On Friday I had a meeting with the speakers’ coordinator, Dianne. I had asked to see the room where I would be speaking so I could get an idea of the set-up. At the time where was a meeting in-session. I asked what the session was: it was the group discussion on Wegener’s – the disease I have. I was amazed by how many people where in the room: maybe 100. I had never met one other person with WG. WOW!