Another major news release!
by CindyAbbott on Jun.22, 2010
Another news story was just released and I have had so many media and speaking contacts I cannot keep up with the replies. To make it more confusing, I am away at a conference for three days! This is all good because it brings the media attention; thus, public awareness to the rare disease organizations!!!!!!
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August 16th, 2010 on 1:25 pm
I just read your story in the Vasculitis Foundation Newsletter. You certainly are an inspiration. I was
diagnosed with WG in 1980, though I probably had it since at least 1978. I wanted to climb Mt. Everest
before the disease hit me, and now I might contemplate doing it after reading your story.
August 24th, 2010 on 10:09 pm
You are such an inspiration!!!
Love you :-D