Reaching Beyond the Clouds

I summited Mt. Baldy today with a Rare Disease Day sign. I am still trying to get California to recognise Febuary 28th as Rare Disease Day.

This article was released today.

Can you pledge to donate one penny for every vertical foot I climb? The summit of Mt. Everest is 29,035 feet. Based on a-penny-per-foot donation, if I make it to the summit your donation to the Vasculitis Foundation would be $290.35. If for some reason I only make it to a lower point, say Camp 3, your donation would be based on that elevation.

What do you think!?! It will be fun following my summit climb and throwing pennies into a donation pot!

From the NORD website:

Patient Advocates Cite Insurance Caps As Critical Difference in Senate and House Health Care Reform

Advocacy groups warn that Senate version of bill would not eliminate caps for millions of Americans

Washington, DC. – The National Organization for Rare Disorders and 45 other patient advocacy groups are warning that the Senate health care reform bill would not eliminate annual and lifetime insurance caps for many Americans, contrary to common belief.  The groups say millions of people would still be vulnerable to loss of their insurance benefits if provisions from the Senate bill are adopted in the final legislation.  

“This is a critical issue for patients with rare diseases, as it should be for all patients,” said Peter L. Saltonstall, NORD’s president and CEO.  “As the House and Senate negotiate health care reform, we must keep in mind the central focus, to create medical security. Capping insurance payments, either on an annual or lifetime basis, can lead to substantial limits on medical care for patients.”  

But Time is Running Out….
  Call your U.S. Senators and Representative Today at
U.S. Capitol Switchboard: (202) 224-3121

For more information on this important issue go to NORD’s News Story.