Reaching Beyond the Clouds

In an attempt to get California to recognize Rare Disease Awareness Day, I have been e-mailing my senators and assembly person. I have also e-mailed the Governor and the First Lady. I find it hard to believe that I might be climbing the highest mountain in the world to raise rare disease awareness and show people how important it is to live life: but the state I live in and work for does not (as of now) participate in this cause. I will continue my efforts to bring the importance of this proclamation to the Governor’s attention.

I wanted to thank all of you have are helping with this journey! Each of you will be able to follow the climb as it happens next Spring. I will be able to post comments and pictures via satellite.

I have used my Frequent Flyer Miles to purchase my LAX to Kathmandu airline ticket! Things are coming together.

I just found out that of the 39 states which recognized Rare Disease Awareness day in 2009, California (my state) was not one of them! Within 18 hours, I had a letter written and mailed to both Governor Schwarzenegger and the First Lady Maria Shriver asking them to declare February 28, 2010, Rare Disease Day in California.