Comments on: What is it like to find out you have Wegener’s Granulomatosis? http://reachingbeyondtheclouds.com/2009/09/28/what-is-it-like-to-find-out-you-have-wegeners-granulomatosis/ Tue, 31 Jan 2012 03:49:50 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Doug http://reachingbeyondtheclouds.com/2009/09/28/what-is-it-like-to-find-out-you-have-wegeners-granulomatosis/comment-page-1/#comment-53 Doug Wed, 16 Dec 2009 15:38:10 +0000 http://reachingbeyondtheclouds.com/?p=427#comment-53 Cindy- I am inspired reading about you, and I am especially pleased that a perfect example of positivity exists on the site because people sometimes see WG as a end to the life they enjoy. Personally, I see it as an opportunity to gain more maturity and insite into oneself, but you approach to it, well, exceeds what virtually all weggies think is possible after the diagnosis of WG. I truly think the support group website gained a big boost with your pretty near heroic story because there were a couple weggie deaths this year that brought the worst of this disease to our attention. I'm with you, though! Live life to the fullest! Cindy- I am inspired reading about you, and I am especially pleased that a perfect example of positivity exists on the site because people sometimes see WG as a end to the life they enjoy. Personally, I see it as an opportunity to gain more maturity and insite into oneself, but you approach to it, well, exceeds what virtually all weggies think is possible after the diagnosis of WG. I truly think the support group website gained a big boost with your pretty near heroic story because there were a couple weggie deaths this year that brought the worst of this disease to our attention. I’m with you, though! Live life to the fullest!

]]> By: Kristi http://reachingbeyondtheclouds.com/2009/09/28/what-is-it-like-to-find-out-you-have-wegeners-granulomatosis/comment-page-1/#comment-27 Kristi Tue, 01 Dec 2009 19:17:41 +0000 http://reachingbeyondtheclouds.com/?p=427#comment-27 Cindy, I am inspired and amazed that a fellow WG is able to reach for the dream you are and help so many doing it. Your are a very special and giving person to be able to do this. My WG was found early and I have been greatful ever since. Getting to know how different all our cases are and there extremes are mind blowing. Such a rare thing so deadly and misdx'd so often. I have dicided it is time for me to take care of myself and workout again because you have inspired me.If you can do this then there is no reason for me to believe I can't try to the best of my physical limits to feel better myself. Anything that I can do is only an improvement for me. Thank you again for sharing your story and inspiring many! Have a great climb!! Cindy,
I am inspired and amazed that a fellow WG is able to reach for the dream you are and help so many doing it. Your are a very special and giving person to be able to do this. My WG was found early and I have been greatful ever since. Getting to know how different all our cases are and there extremes are mind blowing. Such a rare thing so deadly and misdx’d so often.
I have dicided it is time for me to take care of myself and workout again because you have inspired me.If you can do this then there is no reason for me to believe I can’t try to the best of my physical limits to feel better myself. Anything that I can do is only an improvement for me. Thank you again for sharing your story and inspiring many! Have a great climb!!

]]> By: Kelly http://reachingbeyondtheclouds.com/2009/09/28/what-is-it-like-to-find-out-you-have-wegeners-granulomatosis/comment-page-1/#comment-25 Kelly Tue, 01 Dec 2009 03:05:23 +0000 http://reachingbeyondtheclouds.com/?p=427#comment-25 Cindy, You have inspired me to keep going and stay focused. I have been battling WG for over 30 years, just diagnosed July 2008. I had a kidney transplant 1989, and a bunch of other surgeries related to WG. So glad you are reaching your dreams! Cindy, You have inspired me to keep going and stay focused. I have been battling WG for over 30 years, just diagnosed July 2008. I had a kidney transplant 1989, and a bunch of other surgeries related to WG. So glad you are reaching your dreams!

]]> By: Daniella http://reachingbeyondtheclouds.com/2009/09/28/what-is-it-like-to-find-out-you-have-wegeners-granulomatosis/comment-page-1/#comment-13 Daniella Mon, 12 Oct 2009 17:35:33 +0000 http://reachingbeyondtheclouds.com/?p=427#comment-13 This is amazing. You are so stong! I am 20 and was diagnosed with Wegeners in October of 2008. It is really awesome to see someone doing all these amazing large obsticles. Sometimes I feel like WG defines me and limits thing I can do. However more recently I have tried not to think this and continue life as normal not allowing it to define me. This Journey... has given me yet another persective... and I love it.... Thank you for sharing your story!!!!!! This is amazing. You are so stong! I am 20 and was diagnosed with Wegeners in October of 2008. It is really awesome to see someone doing all these amazing large obsticles. Sometimes I feel like WG defines me and limits thing I can do. However more recently I have tried not to think this and continue life as normal not allowing it to define me. This Journey… has given me yet another persective… and I love it…. Thank you for sharing your story!!!!!!

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