What is it like to find out you have Wegener’s Granulomatosis?
by CindyAbbott on Sep.28, 2009
For me: It was a relief! To finally have some answers to the questions and begin a treatment program. There may be no cure for my disease, but now I can fight back.
Loading...
Follow me on Facebook
September 29th, 2009 on 9:47 pm
I would except nothing less from my BADASS mother!!!!!!!!!!!!!!!!!!!!! You are my inspiration :-D
I love you!!!!!!
September 30th, 2009 on 7:58 am
Teshia, Thanks for your support. I hope that I can inspire other people to live life: no matter what the obstacles!
September 30th, 2009 on 10:26 am
Cindy – you are such an inspiration to everyone. Your continual positive attitude and inner strength despite your medical setbacks is awesome. You are a great role model and example of overcoming obstacles and reaching one’s full potential. Someone once said, “adversity does not build character…it reveals it.” You have chosen a path that moves you in the direction of your dream and while the journey is filled with many winding roads, I know that you will eventually find success. You are showing the rest of us that it is less about the destination and more about the manner in which you travel.
September 30th, 2009 on 2:48 pm
Cindy,
Your are truely an inspiration to many of us and my prayers and thoughts will be with you on this adventure and the challenges that you have ment and those which still are ahead of you.
Ron
October 4th, 2009 on 9:08 pm
Cindy,
Since the day I met you I knew you were a wonderful and amazing person, but I had no idea of the strength and determination within you; nor did I know the adversity of which you have been challenged. I wish you all the best and I hope my small donation will assist you in reaching your dreams.
October 12th, 2009 on 10:35 am
This is amazing. You are so stong! I am 20 and was diagnosed with Wegeners in October of 2008. It is really awesome to see someone doing all these amazing large obsticles. Sometimes I feel like WG defines me and limits thing I can do. However more recently I have tried not to think this and continue life as normal not allowing it to define me. This Journey… has given me yet another persective… and I love it…. Thank you for sharing your story!!!!!!
November 30th, 2009 on 7:05 pm
Cindy, You have inspired me to keep going and stay focused. I have been battling WG for over 30 years, just diagnosed July 2008. I had a kidney transplant 1989, and a bunch of other surgeries related to WG. So glad you are reaching your dreams!
December 1st, 2009 on 11:17 am
Cindy,
I am inspired and amazed that a fellow WG is able to reach for the dream you are and help so many doing it. Your are a very special and giving person to be able to do this. My WG was found early and I have been greatful ever since. Getting to know how different all our cases are and there extremes are mind blowing. Such a rare thing so deadly and misdx’d so often.
I have dicided it is time for me to take care of myself and workout again because you have inspired me.If you can do this then there is no reason for me to believe I can’t try to the best of my physical limits to feel better myself. Anything that I can do is only an improvement for me. Thank you again for sharing your story and inspiring many! Have a great climb!!
December 16th, 2009 on 7:38 am
Cindy- I am inspired reading about you, and I am especially pleased that a perfect example of positivity exists on the site because people sometimes see WG as a end to the life they enjoy. Personally, I see it as an opportunity to gain more maturity and insite into oneself, but you approach to it, well, exceeds what virtually all weggies think is possible after the diagnosis of WG. I truly think the support group website gained a big boost with your pretty near heroic story because there were a couple weggie deaths this year that brought the worst of this disease to our attention. I’m with you, though! Live life to the fullest!